The patient is usually followed up by their local hospital or by their primary doctor as required. If chemotherapy is given, the effect of treatment should be evaluated after two to three courses. Quality of life should be highly emphasized in the assessment of patient benefit.
It is important to be aware of the increased psychological burden that may be a result of the time required for the medical work-up, the lower specificity of treatment compared to cancers of known origin, and that the prognosis is generally poor. Both the patient and family/friends may therefore have a greater need for psychosocial follow-up.